Serena Wu

Serena Wu is the founder and director of the Taiwan Foundation for Rare Disorders, as well as the founder and chairperson of the Taiwan Organization For Disadvantaged Patients. She is dedicated to advocating for the rights of rare disease patients and actively participates in various social services, serving as a member of the Rare Disease and Drug Review Committee and a representative at the National Health Insurance Medical Service Benefits Standard meetings, among other roles.

Wu has also long been concerned with the rights of individuals with disabilities, participating in several committees such as the Executive Yuan’s Task Force for the Rights of Persons with Disabilities and the Taipei City Disability Air-Conditioned Vehicle Service Quality Inspection Committee. In addition, she serves as a member of the TTV News Ethics and Self-Regulation Committee, demonstrating her deep commitment to the rights of patients, disadvantaged groups, and media ethics.

Wu graduated from Soochow University with a degree in Political Science and furthered her studies at the Miao-Jue Buddhist Academy and the National Taipei University of Nursing and Health Sciences. Throughout her career, she has received numerous honours, including the International Rare Disease Hero Award from the International Rare Disease Organisation and Taiwan’s Medical Contribution Award. Her professional journey also includes nearly 40 years as the executive director of the American Wheat Association.

The organisations she founded have provided vital support and resources to countless patients, establishing a significant influence in the global rare disease field. With her unwavering belief and tireless efforts, Wu has made tremendous contributions to society, becoming a crucial guardian for rare disease patients and vulnerable groups.